IC Shouldn’t Feel Like A Death Sentence
Many people with IC feel hopeless after having tried everything and still not finding relief. The internet is full of confusing misinformation and doctors haven’t been able to give you real answers. You feel isolated because no one understands what you’re going through.
Amanda C.
Last year, I went into a four month long flare up that left me out of work, out of school, and with no social life. My pain levels were about a 7 to 8 out of 10 for those four months. It would peak with 9 out of 10 pain during flareups, which occurred every two days.
Less than a year ago, I was connected with Callie and her Road to Remission support group. These days, my pain is at a 2 to 3 out of 10, my flareups last one to three days now, instead of four months.
Road to Remission gave me all the answers I was seeking that I never got from doctors.
The best thing that I've gathered from Callie and Road to Remission is that things do get better. The more I learn about my illness, the more capable I feel and the more willing I am to try new things.
I want you to know that even though you have a chronic illness, your life isn't over, there's so many ways to go back to what you love and we're here to help you."
Marin
Before joining working with Callie inside Road To Remission, I had IC symptoms 30-40% of the time. I fairly regularly experienced urgency, frequency, and extreme pain with urination.
There were entire afternoons I set up a TV tray in the bathroom so I could work from the toilet because it was the only way I could find even minor relief. I felt down about myself, and my life, and was spiraling into hopelessness knowing IC is a lifelong condition.
I was starting to wonder if I’d ever have “a life” again and how I was going to pursue things I’d always wanted to, like motherhood.
I’ve now had 3 full months nearly pain-free, with very limited urethral awareness or feelings of not fully emptying my bladder for just 20 minutes at a time on rare occurrences. I have significantly increased my mental and emotional capacity to do the things I want to do and am so so much happier!
Amy H.
Before I found Callie I had extreme pelvic pain, urinary frequency, and burning and had had been severely restricting my diet for 2 years. I was feeling hopeless that I was going to have such a poor quality of life for the rest of my life. I felt like I was so afraid to eat or do anything fun in my life.
While working with Callie I was able to figure out that I actually was not very food sensitive but had other non diet triggers that were causing my issues. This gave me the confidence to eat again.
I started addressing my biggest triggers like stress, pelvic floor dysfunction, and hormones. Once I did that, my pain levels came down and I started feeling normal again.
Amy now considers herself to be in remission.
My Story
Hi, I’m Callie!
And I’m one of only TWO RDs in the world specializing solely in IC.
But I’m also a fellow IC warrior myself. So I know what it feels like to battle that fiery, sriracha crotch pain every. freaking. day.
And I spent many years worrying that I’d never find relief.
Because doctors were always gaslighting me or recommending unnecessary invasive treatments… that still didn’t work.
And it was impossible to find reliable information online.
I thought I was doomed to spend my days chained to the toilet. And that I’d never be able to travel, freely hang out with friends, or spontaneously go out to dinner.
But when I finally became a Registered Dietitian (after getting my MA, completing a 1,200 hr intensive internship, and passing the state board exam), I took things into my own hands.
I discovered my triggers and started saying HELL YES to the things I wanted in life.
Today, I’m 95% pain-free!
And I made it my mission to help others achieve the same.
The thing is, most doctors don’t take IC seriously and they use a blanket approach to treatment.
I’ve discovered that there’s no one-size-fits-all approach to relief. But that doesn’t mean it should be a guessing game.
I look at it like a science experiment and take a systematic, holistic approach.
And many of my clients have reached remission within 3-6 months of working with me.
You deserve to understand exactly what your triggers are so you can live life to the fullest. Because taking Prelief with every meal is so not the vibe.
Ready to take back control of your life?
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